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It Also Looks Like This

30 Aug

I would like to introduce you to Thomas. He is the 8 year old best friend of my son Jacob and the son of my dear friend, Joelle.  These precious boys have been friends since diapers and are definitely two peas in a pod.  They love to be together doing all those neat things little boys like to do. They run, climb, and jump and when they have done all of that, they fall into a heap laughing like only innocence allows. No matter how much fun they have the same conflict always arises.  There is a constant disagreement with Thomas’s mind and his legs.  After a short time of boy play Thomas starts to get an all too familiar ache and stiffness in his legs.  He wants to keep going but his little body says no.  You see, Thomas was born with Muscular Dystrophy, Becker Muscular Dystrophy to be exact.

When we think Muscular Dystrophy we automatically think of young, wheel chair bound, gravely ill, children or more recently, ALS, thanks to the recent awareness from the ice bucket challenge.  Becker Muscular Dystrophy usually presents itself slow and steady.  Thomas has experienced gradual changes in mobility throughout the years but the changes are definitely a challenge not only to Thomas but to his family.  Without a cure, his days of depending on his arms and legs are numbered.

Thanks to MDA (Muscular Dystrophy Association), they have been able to access state of the art services, help, and support they need to help Thomas strive. Great breakthroughs have happened thanks to the research grants and clinical trials and studies they have been able to fund.  The MDA association has given hope to families when all seemed hopeless.

This weekend, when you flip through your TV channels and see the MDA telethon, would you please take a moment and make a donation.  Even a small donation helps in giving hope to families like Thomas’s.

Our greatest prayer is that Jacob and Thomas can experience being old men together and that their laughter will continue to fill our lives for all of our days.

Jacob and Thomas doing what they do best!

Jacob and Thomas doing what they do best

I am inspired by this family’s courage, their joy, and mostly their faith. If you would like to learn more about MDA or would like information on how you can help just click on the link.  http://mda.org/  Have a safe and wonderful holiday weekend!

If you make a donation we would love to thank you! Please use #mdaforthomas on Facebook, Instagram, and Twitter.

#mdaforthomas Becker MD awareness

Jacob wants a lab coat for Christmas so he can be the Doctor who cures Thomas.

~Be Blessed and be a Blessing~

Rebecca

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One Response to “It Also Looks Like This”

  1. Rebecca September 6, 2015 at 7:51 pm #

    Reblogged this on …..and a sprinkle of love and commented:

    With Labor Day once again upon us, please take a minute to give, read, or share this story to help to bring awareness to Muscular Dystrophy and continue to bring hope to all the families affected. Thomas has had some setbacks this year. He has been hospitalized, his body tires and hurts more quickly, and has had to rely more on his wheelchair. In spite of all he and his family has been through they continue to cling to hope and to the One who gives it. They inspire me! Thank you for visiting. ~Be Blessed and be a Blessing~

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