Tag Archives: cerebral palsy

Alison’s Story

14 Jun

Alison is my oldest child. She was born severely premature and has some cognitive delays along with Cerebral Palsy.  Our church put on a special senior service for all our high school graduates.  The families had the opportunity to put together a display of photos and academic, sport, etc. accomplishments.  Our journey has looked different therefore trophies and other such accolades haven’t been a part of her life.  Alison decided to share her story because it is her greatest accomplishment. Our display was a modest piece of tag board with some pictures and her story. I am so proud of her and her resilience and positive attitude, she is my hero! With a little help from mom…here is her story.

MY STORY

My name is Alison Jordyn.  I was born October 31, 1995 at 7:51 PM.  My mom is Rebecca and she was just 17 and 24 weeks pregnant when I was born.  I weighed 1 pounds 12 Oz. I was born so premature that my eyes were still fused shut.  My mom told me what a whirlwind of doctors and nurses there were, all working hard and fast to give me the best shot possible.

I had open heart surgery when I was only two weeks old weighing 1 pound 10 oz.  From brain hemorrhages to dangerous blood infections I fought through each one becoming stronger each day.  My mom told me that she should plan on me being in the hospital for at least 6-8 months but since I am stubborn (I get that from grandpa) I decided 2 1/2 months was long enough.  One month and one day before my due date I was discharged weighing a hefty 4 pounds 7 oz.

When I was born they took my mom aside to prepare her for what life would be like for us.  Because of the grade 4 brain hemorrhage she was told I would never walk, that I would never talk, and that I would be plagued with illness, allergies, and asthma.  Fortunately, my mama has that same stubborn attitude as grandpa and me and never gave up hope.

I was diagnosed with Cerebral Palsy when I was five months old.  Two months later I rolled over for the first time.  At ten months old I said my first word, “hi”.  On December 28, 1997, I took my first steps and I never stopped moving!  I am now 18 and still haven’t been plagued with illness, asthma, and allergies.

When I was in kindergarten my mom was taken aside again and told that I had learned all that I would ever learn. She told my mom that I was incapable of learning new things and maybe school wasn’t for me.  That didn’t stop us!  I have learned so much and I have accomplished and done more than anyone ever thought possible.  We wish we remembered her name because we would like to send her a graduation announcement 🙂

My mom says that I am proof that God is still in the miracle business.  With God, even the impossible becomes possible.

I know my accomplishments seem ordinary to most and that’s OK.  I don’t have many earthly awards and that’s OK too.  You see, my biggest accomplishment is that my life saved my mom’s life.  God chose to use a sick little baby to save my mom from a life of addiction and instead led her into a life of salvation.  Now that my mom knows Jesus my whole family knows Him.  It’s pretty cool to think that I am the reason my whole family will go to heaven.

I am excited for what the future holds because I know the One who holds it.  My future is bright and the opportunities are limitless and I look forward to seeing where my journey takes me……..because my story is just beginning!

Our display

Our display

Thanks for reading!

~Be Blessed and be a Blessing~

Rebecca

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Reflections

28 Sep

I am coming up on a big milestone in my life.  My oldest daughter is getting ready to turn 18.  I became her mama under the most unfortunate of circumstances.  I was a young, unwed, teenage girl with no money and honestly no clue.  What makes the story a little more complicated is that she was born not well.  I was only 24 weeks pregnant when she made her very small and very quiet way into the world.  I think we can all agree that even under the best circumstances having a baby is hard and having a sick baby is super hard.

The past several months has had me being very reflective.  Looking back on that hard first year and the subsequent years that were still a little hard but mostly joyful.  I keep thinking on all the things I should of done and the things I could of done better. I look at her now, a senior in high school, enjoying a life much different than my own.

I was the youngest in a blended family of five, actually I was a big oops!  My older siblings really gave my parents a run for their money.  It seemed one big problem kept overlapping the next.  I was often told to go play and probably unintentionally overlooked because I wasn’t causing any problems.  Fast forward to the really formative years of my life and I was still alone.  I was left to navigate these years with only destructive bahavior patterns leftover from my now grown but still incapable siblings.  It was now my legacy and I didn’t disappoint.  The only difference is that being left alone for so long, I was good at hiding in the shadows, therfore, I was able to avoid real trouble.

I really missed out on healthy behaviors being modeled for me.  When I became a mama, I ferociosly loved my baby girl with all that I had. I didn’t know what being a good parent looked like but I knew that I wanted to be one.  The first years were trial and error.  What I really lacked and really craved for was a woman who I could look up to and someone who could encourage me.  Self pity is an expesive trip to take and I certainly maxed out.  A time came where at a cross road I had to decide once and for all the path I would take.  Since I didn’t have the people I needed I could become the type of person I needed.  I love that even though I didn’t know God, He still had His hand on me.

Thus, the journey began. So here, 18 years later, I reflect on the journey and all that I’ve learned. That the brokenness of your past does not have to be the legacy of your future.  It is never too late to keep trying again.  That with God nothing is truly broken, that all the past wounds, heartaches, disappointments etc..are all God shaped.

So here we are.  I look over at the one who made me a mama and thank God for our journey this far.  She is learning to navigate this complicated world as a young woman with dreams and desires and she is trying to make a mark for herself despite the physical limitations of Cerebral Palsy.  She is walking with the one who loves her most and because of that she is OK and so am I.

~Be Blessed and be a Blessing~

Rebecca

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